Lost without you

Hi Baby...the last few days have been so hard...our neighbor decided that we cant share the yard anymore because all the neighborhood kids and uncle dennys kids were running through the yard and along side his house so he got mad and told us we had to move your swingset and everything off his part of the yard which until then he let us share...mommy had to go buy a fence and put it up so geena and the kids cant be on his side...this leaves us with a yard smaller then a postage stamp, your trampoline barely fits and we aren't sure if we are gonna be able to put the swingset in the yard or have to take it to nana's...when we had to move it I had a total breakdown because that was YOURS and it was the first thing we had to get you when you got sick because you couldn't goto the park like other kids...to most people this might seem like a trivial thing having to move a swingset but to me it was like losing you all over again..its bad enough ill never see you swing high enough to try and hit the top of the canopy like you were flying ever again but now we might not even be able to keep something that meant so much to you..every memory I have of you in the last four years in the summertime revolvs around that swingset...to me it felt like the day you died all over again and I don't know how many more pieces of you I can lose without losing my mind..i haven't stopped crying for days,everytime I go outside and see your swingset across the street in toms yard waiting for it to see if we can move it back to ours or take it apart and move it to nana's I start crying again...I feel like the hits keep coming, like it was bad enough i had to lose you now i have to lose the parts of you i have left...people keep telling me this is going to get easier but it doesn't..everyday without you is like another day I feel like im swimming under water and cant find my way back to the top Your birthday is coming in 8 days and Kyra wants to have a cake for you and let balloons go up to heaven with messages written on them so you can read them when they get to you, I am glad that she is talking about you and wanting to do these wonderful things to make her feel closer to you and make her feel better because at least I know im doing ok by her and she is healing....now if only I could find a way to make myself start to heal...I want to lay in the dark on your birthday by myself and just close my eyes and cry because im not holding you...but I cant do that because I have to be strong for sissy and everyone else...I wish there was someone who was always strong for me..i feel like if im not the strong one that everyone around me will crumble too because we are ALL having such a hard time with you not being here and well someone has to be strong and isn't that a mom's job? I was just sitting outside crying alone in the dark when the chimes started going and it started to rain and I felt like it was you telling me not to cry because you always hated when I cried and when I couldn't stop I felt like you were crying with me...so I sucked it up, stopped crying and came inside to write to you instead and the rain stopped...im glad since then I felt like you stopped crying, I never wanted anything but yours and Kyra's happiness and I tried so hard to give both of you that even when you were battling that horrible disease that was stealing your childhood and eventually your life...please forgive me if I stumble along the way now with Kyra but I am trying so hard to keep her happy and healthy...the school year is almost over and Kyra will be graduating from pre-school but she doesn't want to because she doesn't want to leave helping hands..she says but mommy that was audri's school I don't want to leave..and even when I tell her that you went to Arthur Street for Kindergarten and she is gonna go there and have Miss Frumkin just like you did she says its not the same because you weren't there as long as you were at Helping Hands...please send your sister some warrior strength so she can be ok for kindergarten in the fall baby and while your at it give some to mommy so I can handle watching her go off to KG knowing she is my last baby and im sending her off to Big Kid School...I didn't cry when you went because you were so excited to actually be allowed to goto KG that it made me so happy to see you there but I did wait on pins and needles till you got out the first day and told me how much you loved it...I think with Kyra its gonna be so much harder because I know you wont be there to show her the ropes like she and I always expected you to be..i know the staff at the school will take great care of her, but its still going to hurt my heart knowing your not there in first grade where you belong...I know im rambling now so im gonna stop writing but I love You Baby..Sleep Sweet with Your Angel Friends...Love Mommy

10 very long weeks

I cannot believe that I has been 10 weeks since the last time I held you in my arms or heard you say I love you mommy...I miss you so much it physically hurts...Baby I know that your not in pain anymore and your dancing with the angel's but it doesn't make it any better because I want you here and out of pain, I want you to be whole and happy and riding your bike with all the neighborhood kids this summer...the last couple days have been extremely hard because its been nice outside so all the kids are riding there bikes and I keep expecting to see you come around that corner yelling look at me mom im going so fast with a big smile on your face...the kids are also jumping on the new trampoline that you and Kyra got for Christmas and you should be there jumping with them and doing flips with that smile that lights up the world..i hope your up in heaven using the clouds as a trampoline and bouncing along with your sister..... Having the other kids to play with has been helping Kyra a lot, she is sleeping better and not crying as much which is wonderful,so I sit outside and I smile and watch them play for her and the whole time im missing you so much I want to cry...I am trying very hard to stay busy...Me and Miss Heather are getting the butterfly garden going and Miss Amy is working on the memorial run to dedicate the garden so that we can get your foundation up and running...now mommy is trying to find a lawyer to help me with all the legal jargon which im told is impossible!!!!!!! But I am determined that we are going to get everything up and running and help other kids and not just kids with cancer, any child that has a chronic life threatening illness from newborn to 21 because we saw a lot of different kids when you were sick and some of there diseases don't have any type of foundations to help them...I know that everytime we help another child your going to be there holding my hand and saying good job mommy...these are the things getting me through the day, even when I don't want to get out of bed...today I sent sissy to school and went right back to bed because its Friday and I just couldn't handle it...now she is home and outside playing and smiling so im gonna go out and sit with her and megan and logan and watch them have fun.....I Love you baby and your forever in my heart...have fun with your angel friends xoxoxo

9 weeks without you

Hi Baby I cant believe its been 9 weeks since the last time I saw your beautiful smile or heard you laugh...our hearts are so broken and we just don't know how to go on and LIVE NORMAL whatever that is...people tell me all the time I have to get back into a NORMAL ROUTINE...hell I have no clue what normal is anymore,after years of hospitals and long car drives listening to puff the magic dragon on repeat(exactly 18 times from Hazleton to Danville) I feel so lost when I get in the car and im not driving to the hospital and your not in the back seat going mom can you put woodys cd in or mom can you make my movie work,mom I need a drink,mom I dropped my French fries on the floor...I miss all of that so much its scary..another thing I miss and im sure people reading this are going to think im crazy BUT I miss the hospital...you and I had both made so many friends there and now I feel like not only did I lose you but I lost all of them..the nurses that I could talk to about anything(especially my 3rd shift girls who kept me sane many a night)..the other kids that we kept track of and who became like family...I miss not knowing if they are ok...I miss having someone to talk to that understands what im feeling and doesn't judge how crazy I actually feel all the time....And most of ALL I miss YOU...id do anything to turn back time for one last hospital visit just to hear you yell at me that the lights are to bright or the tv is too loud or you have to pee...any of those things and id give anything to crawl into that bed with you and just hold you,snuggle and talk about all of your dreams and you had alot of them....I am trying to make some of those dreams come true...Miss Heather,Abby and Noah are helping Mommy get everything together for your butterfly garden at your school,its going to be beautiful baby just beautiful....Aunt Amy is helping mommy put together a memorial bike run to help raise money to finish the garden and get your foundation up and running so mommy can help other kids just like you wanted me to...I have already had a couple of families asking me about when its going to be ready, im working on getting bylaws and have a lawyer help me with everything so I can get rolling...Also Penny and Kelly are holding a dance to help raise money...don't worry baby we wont let you down we are going to do everything we can to make Audrianna's Butterfly Wish Foundation a reality......we celebrated Nana's Birthday on the 15th and it was so hard because you weren't there,when we cut the cake and you weren't there to eat a piece a part of my heart broke off and baby im not sure how many more pieces I can lose...this Saturday is the Helping Hands Telethon,Kyra is going to sing with all the kids and I have to go and smile for her when all I can think about is the fact that you should be up there singing with her like you were the last 2yrs...you loved that school and you loved to sing in front of the camera because you were such a ham...I know you will be there with us and you will help sissy remember the words like you always did because she tends to freeze up in front of crowds and tv camers, unlike you who loved every second of the lime light....And your birthday is coming next month...another first without you,these firsts are killers...they are so hard and its so hard for ALL of us especially mommy to fake that smile and get through it...Kyra asked me today if we could have a cake for you and I said yes we would have a cake and we would eat a piece just for you...she smiled and said I think audri would like that mommy...and then we are gonna get balloons and write things on them we want you to know and send them up so you can read them in Heaven...there is not a second of any day that goes by that we don't think about you...everywhere we go there are signs that your with us..people I have never met walk up and ask me if im your mom and then tell me how you touched there lives because you were so strong and courageous....and I tell them that you were then and always will be MY HERO that you taught me more about life and how to live it in your 6yrs then I ever would have learned on my own and I can never thank you enough for choosing me to be your mommy...All I ever wished for you was to live life to the fullest and be happy and you did and now with all that I am I hope that your the happiest angel in heaven because your whole again...no more disease wasting away your body, you have wonderful long curly strawberry blonde hair again and you can laugh and jump and play with all your friends...I love you Baby Close to My Heart Baby You are My Sunshine now and always