Scranton for Aimee's Army Cancer Walk This Weekend

So this week has been a whirlwind of different thing since we came home from the hospital. Audrianna and Kyra were so excited to finally see each other again and be able to hug and kiss.Our wonderful friend Dari McManus THE BEST PHOTOGRAPHER EVER aka Auntie Dari went to the hospital with us for the week and then came back to the house and took pictures of the girls.She catches the soul's of the children she photographs and she travel's all over taking pictures of Sick Children,sometimes they are the last pictures that the parents have to hold onto later.One of the pictures she took of my girls speaks volumes and im going to post it here to show just how precious of a gift she gave me.


When it was time for Dari to head to scranton to help get things ready for the walk our wonderful friends Annette and Jennifer came to pick her up and of course they played with the girls for a while and here is the picture of them...Our Family..before they left.


Once everyone was gone it was back to normal lol whatever that is. Girls went to school and Audrianna was so happy to be back with her class. Then when they came home from school we went through all there clothes,toys and blankets and put about 8 garbage bags together for the victims of the horrible flood we had last week. I am so proud of my girls, they went through and picked out all the stuff they wanted to give to kids that didnt have anything.My girls gave away clothes that still had tags on them that they never wore because they wanted the *flood kids* to have new stuff too!!!!As a mom i was never so proud because i know that i have done something right in raising them,they both have very generous souls.<3

Now we are getting ready for a wonderful weekend in Scranton,Pa with our Cancer Family at the Pediatric Cancer Walk held in Honor of Aimee Dickey by her wonderful Mom Annette who keeps Aimee's Army running just as Aimee wanted. Audrianna gets to be one of the Golden Children and help cut the ribbon for the walk and she is so excited. The walk is Saturday September 17th at Nayug Park in Scranton and it starts at 10am. We love the fact that we get to raise awareness for pediatric cancer and raise money to find a cure and help stop this damn disease from killing our babies!!!!!!!! Hope to see some of you there:)
Have a good weekend everyone and we will see you all on monday, hopefully with New Pictures by our wonderful friend Auntie Dari<3

Chemo week

Audrianna,Auntie Dari McManus and I all checked into the hospital for chemo on wednesday morning.So far Audrianna is doing well with the chemo, other then complaining her tummy hurts and a little bit of itching she is feeling good.Eating isnt going so well though,she asks for food and then takes a bite and doesnt like it and wants something else,today we went to the cafeteria 3 times and i think she ate maybe 2 bites each time!!!! Audrianna's friend Karson is in the room next to us and she loves playing with *Her Baby Karson* all day when they are both feeling ok, and Karson's dad Brian has been keeping both of them laughing which is a great thing.The flooding here in danville is pretty bad and we havent been able to get any visitors since all the roads leading in and out of here are closed,audrianna is upset because nobody came to visit her but i keep telling her its not because they dont want to...its because they cant...but she is 5 and omg is she MAD!!!! She keeps asking if the hurrican is over so the rivers will go down and stop flooding so people can come visit lol she misses her sister and wants her here NOW she told me earlier. Im just glad she is feeling well enough to be mad!!!!!!!

So I spent wednesday night in the ER getting my foot looked at...last week i got glass in my foot and now my foot is INFECTED and Painful because i kept saying i dont have time to goto the doctor(im a mom,who has no time for herself) it will be fine and cleaning it with peroxide and putting a bandaid with triple antibiotic cream on it,BUT once we goto the hospital it got very painful so off to the ER i went...the ER doc did an xray and said there isnt any glass left in there and gave me CIPRO for the infection, so i am hobling around in pain while Auntie Dari chases Audrianna which makes both of them extremely happy. Hopefully i can get the infection under control because as a diabetic thats one thing i have to worry about alot is keeping my feet healthy!

Oh well i will keep you all updated on audrianna and myself tomorrow!!!!! To all our Friends and Family in the path of this horrible flood, please be Safe, our thoughts and prayers are with you<3

Chemo Plan and Life Plan

Thursday September 1st Audrianna and i went to see her Oncology Docs and talk about a plan of action for her relapse.While Audrianna played with the child life specialist i sat and talked to her doctor about what this relapse means for her since EVERY Parent of a child with Cancer and especially Neuroblastoma knows how bad it gets...Relapsed Neuroblastoma has NO KNOWN CURE AT THIS TIME...and may never have a known cure in her lifetime or mine-:( We have decided to use a Phase2 trial from Sloan Kettering which she can get at our hospital,the medicine she will get is Irinotecan and Temozolomide over a course of 5days then she gets 3 weeks off and goes back in. This will continue for 3 months of treatment before they do new scans to see if the tumor is gone or has stabilized. If the tumor has stabilized or is gone then we can continue this course of treatment because it has very small side effects, isnt anywhere near as toxic as anything else she has ever been given and will allow her to have QUALITY of Life. I also talked to her doctor about the fact that if the tumor didnt shrink or stablize or has metastisized into other lesions then we want to stop treatment and take her home and let her have QUALITY OF LIFE with her Sister and the rest of her friends and family until she is ready to go.
I know some people are going to give me a hard time about this and say im giving up and blah blah blah...but im not giving up, believe me the selfish MOM side of me SCREAMSSSSSSSS TRY EVERYTHING I DONT CARE IF IT MAKES HER SICK AS LONG AS SHE IS HERE....but then the sensible Mom side of me that has watched other kids suffer says...that isnt what she would want, Audrianna is a Vibrant little girl that loves life,she wouldnt want to spend what little time she has left strapped to a hospital bed throwing up and waiting to die so stop being selfish and thinking of yourself and do what would be best for her and give her Quality over Quantity of life. And the sensible Mom always wins because this isnt about me, its about HER. I sat and had a talk with Audrianna just me and her and asked i asked her if the doctors tell mommy that the cancer is too bad and nothing they can do is going to make you better and you are going to go be with god, would you want to keep fighting and try everything even if it makes you really sick and you have to stay in a hospital OR would you want to come home and be with Mom,Dad,Sissy,Nana,Poppa John,Granny,Poppy,Dustin,Bret,Lizz,Uncle Travis,Uncle Ed and all the other people that LOVE YOU until its time to go with god and she said...go home Mom,i dont want to be sick forever id rather play with my sister till i goto the Angel's......NOBODY SHOULD EVER HAVE TO HAVE THAT TALK WITH THERE CHILD AND GODDAMMIT MY CHILD IS 5YRS OLD going on 50 thanks to Cancer...so for all the people that would think to put me down for this decision,they should think before they speak because until you have Walked in the shoes of a cancer Mom/Dad dont you dare judge.
September is Childhood Cancer Awareness Month...are you aware?? Did you know that 46 kids are diagnosed with cancer everyday and that 7 kids DIE each day?? Do You know that the GOLD RIBBON Is the symbol for pediatric Cancer?That only 3percent of all the money raised by the american cancer society goes to pediatric cancer?? Please if your reading this,please do something to bring awareness to pediatric cancer for the month of september and remember without our children there is no future.....so help another family be saved from hearing the words Your Child Has Cancer....Your Child has Relapsed....Your Child is going to DIE!!!!!!!!!!